THE SEVENTH DIAMOND

Monday, July 28, 2008

Help Wanted....Special Needs List


Hello everyone! My agency is forwarding me a special needs checklist to fill out for them so that they know what conditions we would be comfortable with. There are so many different special needs and so many terms. I would like to ask anyone who has a special needs child and is comfortable talking about it to please leave me a comment describing the SN so that I can have something to refer to besides the internet when I fill out this form.
Thank you so much! I really appreciate it.

26 comments:

verna said...

Kim,
Noah was listed as a hand deformity. According to the current definitions, he would be a moderate need. He actaully has webbed fingers on his little hand. Technical name syndactyly. Multiple fingers=polydactyly. Basically, ---dactyly has to do with fingers.
God bless you as you ponder this needs list.
-v

Isabella's Mommy and Daddy said...

Sorry I am no help... We don't get the pleasure of filling out one of those checklist.. our agency doesnt' do SN.. So we are in for a LONG wait..
I am sooo excited for you....
HUGS....

GWEN OATSVALL said...

to me this is such a hard question ... when we first started this our list was small, but by the time the 3rd list was out our hearts were growing for these precious children who needed a family and so much love ...so then we were open to much more like... Hep B, cleft lip/ cleft palate, missing one limb, some epilepsy cases, older children, heart children, and of course now we have sweet Maggie, whose condition was much worse than the medical reported ...

this is such a heart thing and i know your heart is huge ... i am sure you are praying about what you feel you can handle as a family... email me if you more specifics ...

love ya girl !!!!

Pixel Fairy Princess said...

You can ask what ever you want to about Princess-in-Training. I know that I have already shared a lot with you, but just wanted you to know that you can ask anything :D
Ladybug hugs,
;D

Kim Kenward said...

Our daughter required open-heart surgery 3 weeks after we returned from China. I updated our blog with before and after pictures and a link to her condition last night. We're celebrating our 3 month anniversary since heart surgery. Feel free to ask me about heart issues.

http://kenward.blogspot.com

Desiree said...

Hope had club foot. Grace has cleft issues and our middle son has heart issues. Hope didn't require surgery but will have PT. Grace will need several surgeries and our son we are on watch and see if it heals on it's own wait. Hope also has severe excema. None of these sn's are a big issue, scary sometimes, but it's amazing the strenght you have when you are a parent. If you want more info, please email me.

Somewhere In The Sun said...

Lili had Epilepsy so I can answer questions about that. I would not choose that SN again because of the risk of death. However, having said that, I believe that God will lead you to YOUR child, no matter what the SN.

I'm not sur if you know Olivia's SN or not. It's private but if you are interested you can email me and I'll discuss it with you.

~Lynn

mommy2gabby said...

Hi! I am so excited for you that you are in the process of filling out the paper work for SN's.

I don't know how much of our blog you have read yet. It goes into some detail but not alot about our daughter. She has Autism. She is not severe but also not Aspberger (high function). It is not an easy thing to deal with but God has given us the strength to help her with anything she needs. She was not talking in full sentances for a long time, had delayed motor issues, potty issues, still has sensory processing disorder and a little bit of obsessive compulsive disorder.

She is progressing with lots of therapy 3 times a week. She is beginning to read, do simple addition, counting money, loves to sing and dance. She is a joy and the love of my life. Would I have choosen this for my life? Probably not but I don't look back. She is our's forever and we are so blessed to have her. She has taught me so much!!

If you need more information contact me.

Hugs,
Jody

ThatGirl said...

ASD or ASD/VSD

Our cardiologist saysboth the kids are "perfect." I heartily recommend this SN!!

Special K said...

Our little guy has cl/cp, lip was repaired in China, palate repaired here last month. Ask me anything you want to know!

Shelly and Family said...

Hi Kim. Our daughter Francesca was dx with a mega colon at around age 19 months. When we filled out our MMC list back in Oct 2007, we checked off many medical conditions. In May 2008, we revised the list and added...actually written in the words "mega colon" and was matched with our newest addition, Annabelle Faith on June 27, 2008 who is currently waiting for us in China. Now, I am not saying that a mega colon is something that you should considered...but if you would like more info on it....just let me know (I feel like I actually know this area of medical info).

(according to our agency, when I mention listing mega colon on our MCC I was told that we would most likely not be match with a child under 2 with a mega colon...and boy I bet they are now eating their words now because within the following month, we were match!)

jennifer said...

I don't have anything to offer, but I am enjoying reading what the BTDTs have to say. We have the same list, but haven't filled it out. I don't know what many of them are either.

T & R McGrath said...

Our son had a cleft lip and cleft palate, lip repaired in China and his palate was repaired in February. I wouldn't change a thing it is a none issue for us. He goes to speech therapy twice a week and three short months is talking...

Go with your heart, I am a true believer that God only gives us what he knows we can handle.

Please feel free to email me directly at phooket@aol.com I would have happy to talk more about it

Carol said...

Emily is VSD/ASD po....operated on in China.....doctors said it was better than they could have done.........no medications...just yearly cardio check up..........

LINDA said...

I don't have any adoption experience to share but I do know alot of handicapped kids. Two of my nieces had heart defects as babies, had surgery, and are living happy, normal lives.
I have a brother that has epilepsy and while it isn't something one would ask for, it is something that can be controlled and lived with.
I had a daycare in my home years ago for children that were in protective services. They suffered from abusive or neglectful situations. They needed and wanted love same as all children.
I think you already know the answer to your question. If God has opened your heart to SN children, you are already sure. Go with your heart...

Tracey & Mike said...

Checking in after being pretty much MIA for a while (busy summer ...)
Ran's SN is hearing loss, but you already knew that! It was not something that we had actively pursued on our list, but it was more or less an oversight on our part. It is such a manageable need. The resources we have available to us are fantastic. And so is Ran! If you ever need more info I'm more than happy to chat!

Michelle said...

ASD and VSD. Mia's diagnosis was VSD (a hole between the heart's two lower chambers), but we found out she also had a hole between her heart's upper chambers (ASD) after her first ultrasound when she came home. Both are unrepaired, but the holes are relatively small and neither cause any problems at this point and do not look to cause any in the future. We just have to take her to the cardiologist one time/year. She has the energy of 10 kids.

Funny thing, we chose the SN program because we wanted to adopt an older child and were told we would most likely get a referral of a younger child through the NSN program. We ended up falling head over heels in love with Mia who was much younger than we had in mind. God will lead you to your child.

Cyndi said...

hey I am going to send your e-mail to my friend Jan she has 2 special need children. I know this is a hard thing but God will lead you to your child.

Denise C said...

Oh sweet Kimberley, I will be praying for you all as you follow God's leading to the child HE has already chosen for your family!
I am so excited to see what GOD has in store for your precious family!!!
Love & Hugs!

Holly said...

Josiah has "limb difference"
His right leg is an inch longer than his left and slightly bigger in circumference!
May the wisdom of the Lord direct you!
Blessings,
Holly

Michelle said...

Hello. It is great that you are asking this question to become more informed. When we first started the China process back in May of 06, and got our LID of 12/06, I just knew our daughter had already been born by our LID. She had! I knew even before this big slow down that I wanted to do the waiting child program, it just felt right, as I have worked with kiddos with special health care needs for over 11 years now. It is really a wonderful thing!!! We were open to many things, and our daughters special need was developmental delay due to prematurity. She was 3 lbs the day she was born. Sometimes prematurity can bring on more significant needs, but I reviewed her medical, and everything appeared on target with factoring in the prematurity. She is almost completely caught up already! I also would consider a need like torticollis, and cleft lip and palate. I pray the Lord will bring your special little sweetie to you sooner than later!

Jet said...

Hi,
Our son has microtia/atresia (left ear).
This has been a non-issue for us; his development/communication skills are great (in fact, he doesn't shut up....LOL)
We just had referral of a girl with repaired VSD/ASD. This will mean check up once a year with cardiologist; but she isn't home yet, so can't tell you about that.
If you have any questions about microtia, you can contact me though.
Jet

Joanne said...

Not sure if I'm too late ~ I wasn't in "blogland" yesterday as we were having our 12 month post-placement visit with our SW!
Anyhow, I didn't get to read everyone's comments, but wanted you to know that Mia has VSD (Ventricular SEptal Defect) which is basically a "hole" in the heart. One of my sons had VSD and ASD (Aortal Septal Defect) both of his closed; which is usually the case. Mia's is closing and now the size of a pin hole. These heart defects usually close on their own or need a surgery to close to hole. It is worth looking into on the SN list! Good luck to you!
Joanne

k1 said...

I'm pretty sure you know about my niece Ella's, but in case not, it isn't my place to share, it's her Mom's, so you can get with Kelly.

Am so glad you got so many responses!

Greg and Steph said...

Hi! SN is very close to our hearts. Both of our girls are from our agency sn list. I know that the Lord will show you what is right for you and your family. I will be praying for y'all.
I do not discuss HG's main sn on blogs, but I would be glad to talk to you about it privately. We were originally told about one need that was corrected in China. Prior to travel, they notified us of another need. It turned out that she has "multiple unique qualities." These have not hindered her in development or activity! I tell her that God was very creative on the day He designed her!
I am praying for y'all! I would love to talk to you!
Steph

Gail said...

Oh Kim, just read your post and I'm so happy things are moving along so well for you!!! William Michael's SN was cleft lip and palate, we were told in the referral that the lip had been repaired and later found out the palate had been repaired too. We were also open to club foot, some congenital heart defects and hand or foot deformities. You can also email me for specific questions about any SN. I was a peds and neonatal RN for 17 years. I'll be praying for you friend. You will know your Sophia when you see her, I promise. In our case we didn't see his picture for a few days, but I could tell by the written description of him that he was 'our son.'

Gail (leaving tomorrow for home from China)